I was told about this when I was put on this drug back when I was about 11.
They did know then. A lot of us in our 40s and 50s who are/were on the drug were also told back in the early 80s and before.
It seems to be younger people who have been affected. I've heard a couple of theories. One blames the medical profession and the other is just as valid but isnt voiced publicly.
Everyone I know on the drug either got of it to have kids, switched to have kids, adopted or remained childless - that is from my age group.
I remember being told, it was gory. The minute I had a serious boyfriend I was put on the pill.
Everytime they have tried to take me off Epilim, there has been some freaking hassle. I couldn't put a child through the potential risks from the drug or the seizures and everytime I've tried to switch lo lamotrigine or keppra - the current safer options everything has gone tits up.
I like kids. I spent decades working with them. I have 2 stepsons and 2 little grandkids. I can roll with it.
anyone gives me stick about not being a mother, I just tell them about the teratogenicity of my drug.
Usually shuts them up.